Statute

STATUTE OF THE VOLUNTARY ORGANISATION “ASSOCIAZIONE VENETA PER LA LOTTA ALLA TALASSEMIA”

Art. 1

Denomination and Headquarters

The voluntary organisation entitled “Associazione veneta per la lotta alla talassemia” is hereby established (hereinafter referred to as: Association).
The Association’s registered office is in Rovigo; the operative office is located where the President has elected domicile.

Art. 2

Statute

The Association’s activity is regulated by this Statute.
The Association acts in accordance with the law dated 11 August 1991 no. 266, regional and national laws and the general principles of the legal system.

Art. 3

Legal Force of the Statute

The members of the Association are obliged to observe the Statute.
It is the fundamental guideline to the Association’s activity

Art. 4

Amendment to the Statute

The Statute may be amended by the Assembly.

Art. 5

Interpretation of the Statute

The Statute is interpreted in accordance with the rules of interpretation of contracts and in compliance with the criteria of art. 12 of the civil code laws.

Art. 6

Solidarity

The Association pursues the objective of civil, cultural and social solidarity.

Art. 7

Objective

The specific objective of the Association is to promote any initiatives aimed at preventing thalassaemia and providing the best social and healthcare treatment for thalassaemia sufferers.
Specifically, the Association intends to encourage:

a) Awareness among citizens of the nature of thalassaemia and the methods of prevention;

b) The implementation of global healthcare for thalassaemia sufferers, in observance of the norms of the therapeutic Protocol and in the forms most suited to preventing hindrances to their social life;

c) The training of personnel specialised in caring for thalassaemia sufferers;

d) School and work placement for thalassaemia sufferers, in collaboration with the relevant Authorities;

e) The enactment of new norms designed to improve the social status of thalassaemia sufferers;

f) Collaboration with regional Councils, local health authorities and other public Authorities to ensure identical social treatment and healthcare for thalassaemia sufferers throughout the territory;

g) The spreading of information to thalassaemia sufferers, their families, healthcare workers and public administrators concerning any new developments about thalassaemia, also by organising congresses and study days and by publishing informational works;

h) The raising of funds to finance scientific research into thalassaemia.

Art. 8

Field of implementation of the objectives

The Association operates in the territory of the Veneto region.

Art. 9

Members

Anyone who shares the Association’s objectives and is moved by a spirit of solidarity may be a member.
The members may be ordinary, contributing and honorary.
Ordinary members are adult thalassaemia sufferers, their relatives and any other person who pays the annual membership fee.
Contributing members are individuals, associations, corporations, companies, foundations, etc. who contribute financially to achieving the Association’s objectives.
Honorary members are prominent figures from the fields of culture, science, art, entertainment, etc. who agree to represent the Association and spread the message of solidarity.

Art. 10

Admittance of Ordinary Members

The Board, at the applicant’s request, decides the admittance to the Association of ordinary members.

Art. 11

Members’ rights

Ordinary members have:

a) the right to participate in the adoption of all the Assembly’s resolutions;

b) the rights to information and control established by the laws in force and the Statute;

c) the right to the reimbursement of the real cost of activities, under the existing laws.

Contributing members can take part in Association assemblies, without the right to vote.

Art. 12

Ordinary members’ responsibilities

The ordinary members of the Association shall perform their activities personally, spontaneously and free of charge, without profit.
The behaviour towards the other members and outside the Association is animated by a spirit of solidarity and implemented with honesty and integrity.

Art. 13

Exclusion of ordinary members

Any ordinary member who contravenes the responsibilities established by the Statute may be excluded from the Association.
The exclusion is decided by the Assembly after hearing the person’s justifications.

Art. 14

Association Organs

The Organs of the Association are: the Assembly, the Board, the President and the Vice-President.

Art. 15

Constitution of the Assembly

The Assembly is composed of all the Association members.
A member can represent a maximum of two other members, by written proxy.

Art. 16

Presidency of the assembly

The Assembly is chaired by the Association President or, in his/her absence, by the Vice-President.

Art. 17

Convocation of the Assembly

The assembly meets at least once a year, summoned by the Association President.
The association President summons the Assembly with a written notification, containing the agenda, sent to each member or displayed on the Association’s Noticeboard. This posting is advertised in a regional newspaper.

Art. 18

Validity of the assembly

The assembly is validly constituted, at first call, when the absolute majority of ordinary members is present; at second call, whatever number of ordinary members are present.

Art. 19

Assembly voting

The Assembly deliberates by a majority vote of the ordinary members present.
The resolution to amend the Statute occurs in the presence of the absolute majority of ordinary members and with a favourable majority vote by the ordinary members present.
The voting is open, unless it concerns persons.

Art. 20

Assembly meeting minutes

The assembly’s discussions and resolutions are summarised in minutes, undersigned by the President.
The minutes, edited by the President, are archived at the Association headquarters.
All members of the Association have the right to consult the minutes of the Assembly meetings.

Art. 21

Composition of the Board

The Board is composed of nine members, elected among the ordinary members by the Assembly.
In the event of the resignation of a member of the Board, the Board will arrange his/her replacement with another ordinary member, subject to ratification by the Assembly at the first valid meeting.

Art. 22

Validity of the Board meetings

The Board is validly constituted when the majority of its members are present.

Art. 23

Duration and Functions of the Board

The Board holds office for three years and can by revoked by the Assembly by a majority vote of the ordinary members.
The Board normally meets every four months, or whenever the President considers it necessary or appropriate or at the request of a third of the Board members.
The Board exercises the ordinary and extraordinary administration of the Assembly.
The Board resolutions are always adopted by a majority vote.

Art. 24

President and Vice President of the Association

The President of the association is elected, by a majority vote, by the Board. He or she may be re-elected.
The Board may revoke the President, again by a majority vote.
The President has legal representation of the Association towards third parties and in court.
The President attends to the implementation of the resolutions adopted by the Assembly and the Board and oversees the proper pursuit of the Association’s objectives.
The Vice-President of the Association is elected by the Board by a majority vote and stands in for the President in the event of absence or impediment.

Art. 25

Economic resources

The Association’s economic resources consist of:

a) movable and immovable property;

b) contributions;

c) donations and legacies;

d) any other forms of income.

Art. 26

Property

The association’s goods are immovable property, registered movable property and movable property.
All property is purchased by the Association and registered in its name.
The immovable property, the registered movable property and the movable property located in the association’s headquarters are listed in the inventory, which is deposited at the Association’s headquarters and may be consulted by the members.

Art. 27

Contributions

They may be ordinary or extraordinary.
The ordinary contributions consist of the annual membership fee, its amount being decided by the Board.
The extraordinary contributions are the ones paid by the contributing members.

Art. 28

Donations and legacies

Donations are accepted by the Assembly, who decide on their use in line with the Association’s statutory objectives.
Testamentary legacies are accepted, with reserves, by the Assembly, who decide on their use in line with the Association’s statutory objectives.

Art. 29

Income from Marginal Activities

Income from marginal commercial or productive activities is recorded as a specific item in the Association’s balance sheet.
The assembly decides how the income is to be used, which must nevertheless be in line with the Association’s statutory objectives.

Art. 30

Transmission of goods

In the event of the dissolution or closing down of the Association, the goods, after liquidation, shall be devolved to associations with an identical or similar purpose.

Art. 31

Budget

The Association’s budget is drawn up by the Board; it is annual and coincides with the solar year.
It contains, subdivided into individual items, income and expense forecasts for the subsequent year.
The budget is approved by the Assembly.
The budget is deposited at the Association’s headquarters fifteen days prior to the Assembly meeting and can be consulted by all members.

Art. 32

Final balance

The final balance is prepared by the Board.
The income and expenses for the year are itemised.
The final balance is approved by the Assembly, within three months of the closure of the business year.
The final balance is deposited at the Association’s headquarters fifteen days prior to the Assembly meeting and can be consulted by all members.

Art. 33

Employees

The association may hire no more than two employees, also part-time.
The relationship between the Association and the employees is regulated by the law and by the service sector employment contract.
The employees are insured, according to law, against illness and accidents and third-party liability.

Art. 34

Self-employed collaborators

The association can use self-employed collaborators.
The relationship between the Association and the collaborators is regulated by the law.
The self-employed collaborators are insured against illness and accidents and third-party liability.

Art. 35

Members’ insurance

The members of the Board and the other members who perform regular activities for the Association are insured against illness and accidents and third-party liability.

Art. 36

Association liability

The Association is liable with its economic resources for damage caused by breach of stipulated contracts.

Art. 37

Association insurance

The Association may insure itself against damages due to contractual and extra-contractual liability.

Art. 38

Relations with private corporations and individuals

The association co-operates with private corporations and individuals in the achievement of the solidarity objectives.

Art. 39

Relations with public corporations and individuals

The association co-operates with public corporations and individuals in the achievement of the social, civil, cultural and solidarity objectives.

Art. 40

Final dispositions

For anything not provided for by this Statute, reference is made to the current laws in force and the general principles of the legal system.

A.V.L.T.

Statute

Art. 10